TPI Children World-wide and Family Links
When our son James Stewardson was first diagnosed in April 1994, we were led to believe James was the only child in the world alive at that time with TPI deficiency. Over the next few months we discovered another 3 TPI families and since we launched the TPI Trust Internet Home Page in May 1996, we have found other TPI families in America, Australia, France and Spain.
We have got to know all the families very well and communicate regularly either personally, as was the case with Jordan Stokes in the UK or by letter, e-mail. With the Smith family in America we have regular Internet Video Conferences.
It is also very likely the TPI families world-wide are related and very possible the faulty gene originated from a one family many generations ago!
Possible links between the TPI families?
